Categoría: Orphanet Journal of Rare Diseases
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Health and social challenges faced by rare disease patients in Hong Kong: a cross-sectional study
Background Methods Results Conclusions …
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Impact of CFTR modulators on caregiver burden in cystic fibrosis: a cross-sectional study in Brazil
Objective Methods Results Conclusion …
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Impact of CFTR modulators on caregiver burden in cystic fibrosis: a cross-sectional study in Brazil
Objective Methods Results Conclusion …
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Quality of life and burden of caregivers of patients with alpha-mannosidosis: an international survey
Background Results Conclusions
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Clinical outcomes in alpha-mannosidosis: a systematic review of therapeutic approaches
Background Objective Methods Results Conclu…
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Quality of life and burden of caregivers of patients with alpha-mannosidosis: an international survey
Background Results Conclusions
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Clinical outcomes in alpha-mannosidosis: a systematic review of therapeutic approaches
Background Objective Methods Results Conclu…